Ok, now here is the low down on oldest DS. When we took him to the emergency room last Saturday, they gave him another cat scan, more x-rays and every blood test you can imagine. We then visited our own doc on Wed. The good news is that all his test cam back good. They can't find anything else wrong with him and he seems to be well recovered from his surgery. His blood cell count is even almost normal now after his transfusion. They say the chronic pain he is suffering in his head is from his sleep disturbance and should correct it's self. Same with the chronic stomach pain, which they say is from him mono. Since he had so many complications with it he could take up to 4-6 months more to fully recover. His spleen is still enlarged also. They are also concerned that this may be turning into Chronic Fatigue Syndrome. There really is nothing more to be done than to try to build up his immune system, which was compromised with the infection from his tonsils and his blood transfusion. He also needs to stay hydrate and eat a high iron diet with little to no sugar, caffeine, dairy, yeast and pasta (wheat). I feel so over whelmed. I am concentrating on the hydration currently and dreading the food issues. He is too eat mostly eggs, fish and beans for protein. He would sooner polk his eye out with a spork than eat an egg! I can't think of one other food he despises more than eggs! Pray for us. We are also still having issues with his blood pressure, he can't seem to keep it up. Thursday evening it dropped off again 40/20 and he fainted again! He is dizzy all the time. I just keep shoving juice in his hand every chance I can. Last night he tried to eat a McD's burger, he brought it back up a couple hours later. Good times, good times. Sigh. Keep praying for us.
Tomorrow is our wedding anniversary but I think we are just going to go out to dinner tonight. No elaborate celebrations. I am so stressed, I am afraid to be away to long from the kids (DS). Even yesterday, I wouldn't have spent so much time at the church if there hadn't been someone else at my house to monitor DS. So we will probably eat local at D.J.'s steak house. They have great rib eye's and the best Greek salad I have ever had! There home made onion rings aren't to bad either - LOL Which reminds me, last Thursday was my second W.W. weigh in. My DH was at work and the older two kids were at a library TAG meeting. So I took the twins with me, and they were a hoot! They have no idea why they were there. They just stood in line with me and got weighed too. They guy who runs it was so sweet to them. So they got weighed, I got weighed and then we went to the library. They thought it was a great afternoon! smile Ok, here are the numbers - Elijah weighed in at 43 pounds. Elysha weighed in at 38 pounds, and I . . . not a chance! LOL But I did lose 5.5 pounds! For a two week total weight loss of 8 pounds. I was sooo relieved, but I felt I had earned it. I had made so many hard choices that week. Yogurt instead of chocolate covered pretzels. Grilled shrimp with steamed veggies instead of a cheesy bean burrito . . . you get the point. Hope this week is just as good. Yesterday I was so good it scared me. I didn't eat anything I cooked for other people at church. I didn't even flinch when one person brought in pop tarts and chips to serve the fire dept. workers. OK, I did flinch when she opened the chips and put them in front of me, but I didn't sub come! LOL
Well DS was to sick to work at the rabies vaccination clinic today and is still feeling poorly and has low b/p again. Think I will get him a big glass of the discounted o.j. I found today and go help the rest of the kids color eggs.
Have a very blessed Easter, Beth Ann
1 comment:
Have a wonderful holiday with your family.
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